This is a scan from August after the surgery - you can see the damage surgery has done to my bones and tissue and how the inflammation has reduced in size.

Unfortunately it has now grown again.

MRI scans

This is a pic from the MRI I had when first admitted to hospital. You can see the tumour/swelling/lesion/mystery guest in my spinal cord

All bets are off

Just a quick message to let you all know that the operation scheduled for yesterday morning was cancelled as some spinal fluid tests from a lumbar puncture are still outstanding.

In the meantime I am going to give the Bilharzia treatment a go for the next two weeks and see if that works. Pretty much every doctor seems to think that it is a waste of time but I have nothing to lose really.

My surgeon at St. Georges and the one from Queens Square had a meeting last night and seem to think that surgery is inevitable due the growth of the tumour/lesion so I will have to have excision surgery at some stage unless it miraculously disappears.

Thanks for your messages/emails/texts.